Brittany Roche



Committed To Finding A Cure For Neurofibromatosis & Improving The Lives Of Those Afflicted
Our Foundation
Brittany's Story
2019 Fall Golf Classic
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Doing Great Things

Brittany Roche loved life, loved helping others, and lived with the belief that no matter what complication she was going through, there was always someone out there who was going through trials much worse than her own.  Sadly,  Brittany  passed away from an inoperable brain stem tumor caused by Neurofibromatosis (NF) on June 8, 2016.  She was  just 25 years old when she died.  Brittany began her battle with NF at 2 years old when she developed an optic nerve tumor and was treated with radiation therapy.  Unfortunately,  she lost the vision in her right eye.  At the age of 6 she developed MoyaMoya syndrome and needed brain surgery to create blood vessels on the surface of her brain.  Throughout her life she had numerous tumors removed, many of them malignant. Just when she would begin to have a few years of  normalcy,  she would be  faced with another NF complication.  She dealt with learning disabilities as well as social issues caused by NF.    Brittany's family and friends worked tirelessly at fundraising for NF research in hopes of finding a cure.  Even after her passing, we continue to believe it is still important to continue this fight.